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Amongst other things, this is a love story.... the theme changes occasionally... this year it is fitness and learning to love yourself.
Showing posts with label care for the carers. Show all posts
Showing posts with label care for the carers. Show all posts

29 April 2015

Young again. #atozchallenge Care for the carers.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  


Young again.



Her flawless skin, laugh and smile made a lot of people think she was younger than years.  

Her attention to detail, strength and loyalty made her seem older.




That's her sitting in the middle. 18 years old showing off the green dress she sewed for herself, in preparation for her migration to Australia.

Even after the Doctors, therapists and everyone else told her to stop wearing them - she wore shoes with high heels.  

I lent her my boots when we visited a farm once. She said she felt like me. Then she hopped and jumped like she was young again.



***

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Learn more about:

 The A to Z challenge here.

28 April 2015

X - eXonerated. #atozchallenge Care for the Carers

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  

X - eXonerated 







So many of Mum's friends said they would never have guessed that it was me that would take on the role as her carer:

Me the black sheep.

Me who taught her how to swear.

Me who fought back and returned the key.

Me who greyed her hair.

Me who travelled far away.

Still they say I'm hard to understand. 

All the frustration, tears and pain I caused in the beginning 

eXonerated

by the love, support and care they witnessed in the end. 



***

I use #atozchallenge when sharing my favourite posts.

Like Reflex Reactions on Facebook

Follow @ReflexReactions on Twitter

Add me to your circles on Google+ 


***

Learn more about:

 The A to Z challenge here.

27 April 2015

Worry Jar. #atozchallenge. Care for the carers.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  


Worry Jar





"Please Mum, don't worry"

"I'm your Mother, it's my job to worry."  Of all the misguided lessons she'd learnt this was the most destructive of them all.   

I started a worry jar. One dollar for each worry. Repeated worries cost double. I told her it was the easiest money I'd ever make. So entrenched was her duty to worry, she smiled and said she was willing to pay. 

I tried to show her what an empty jar looked like. 

Worry gave her a purpose. Her creative imagination wasted on wrestling anxiety and strengthening sorrows.

'Why worry?' I'd recite what I remembered of the Irish philosophy stuck on her fridge as we were growing up. '...Either you are healthy or sick... if you're healthy you have nothing to worry about.  If you are sick you will either get better or die....if you die you have nothing to worry about' - or something like that.

Every afternoon around 4:00 o'clock, she'd worry about where the kids were. The neighbourhood's kids had become adults decades ago. I asked her all sorts of questions. 'Whose kids, how many of them, how old are they, where were they before..?' I knew she meant her own babies but still I tried to move a mind that had lost its way in 2012, and lingered at times in long ago. 

In the end I stuck to reassuring her that everyone she worried about was happy and safe.  

"Thank-you. That's all that matters." she'd say.

One morning I wrote her a note. Anything written down was important and trusted. It worked better than the worry jar. I gave her the same note almost every day. It would have been better without the date. 

"2014?" she'd question. 'Already.' I'd say.






***

I use #atozchallenge when sharing my favourite posts.

Like Reflex Reactions on Facebook

Follow @ReflexReactions on Twitter

Add me to your circles on Google+ 


***

Learn more about:

 The A to Z challenge here.

21 April 2015

Respite from Rage. #atozchallenge - care for the carers

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  


Respite from Rage.







My family have always had some problems with me. 

20 April 2015

Quibbles. #atozchallenge Care for the carers.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  


Quibbles




The Doctor told me to treat her like she used to treat me when I was child.

I remember her being gentle but firm.

It was important that she maintain her own independence for as long as possible.

18 April 2015

Palliative Care Team. #atozchallenge Care for the carers.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  

Palliative Care Team





Palliative care is a speciality field of mostly non curative, system management. 


Mum had a multidisciplinary team including staff at a Hospital and The MND association. A Neurologist, GP, Nurses, Pharmacists, social workers, occupational therapists, physio's, a dietician, speech pathologist, a volunteer hairdresser and more. None of them knew her.

17 April 2015

Omnipresence. #atozchallenge Care for the carers.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  


Omnipresence





They say the departed surround the dying. If that's true then Mum saw and felt their presence often.  

16 April 2015

Now or Never. #atozchallenge Care for the carer.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  


Now or Never.




It was a bit of rush to organise Mum's Last will and testament. Her memory had become so bad she had bank accounts she didn't remember existed.

8 April 2015

Freedom from Fear #atozchallenge Care for the Carers

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.


Remember to care for the carers.  


Freedom from Fear







One of the early signs that Mum had a progressive disease (or two) was the increase in her fear of almost everything.  Fear of the dark, fear of driving at night, fear of falling. She was also fearless.  

4 April 2015

Conflicted. #atozchallenge Care for the carers.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer, a privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on some of the stories and emotions that presented themselves during this time. 


Remember to care for the carers.  

Conflicted.




At some point I realised:

Encouraging her to eat was more like force feeding. 

2 April 2015

Bemused and Befuddled #atozchallenge Care for the carers

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor neurone disease. For her final 3 months I was her main carer. A privilege I am grateful for and will cherish forever. This years #atozchallenge theme will focus on being a carer / care-giver.



Remember to care for the carers.  


BEMUSED and BEFUDDLED





You can expect a look of bemusement if you tell a carer that they should 'never be a slave to anybody.' (Accusing them of martyrdom has the exact same effect.)

1 April 2015

Anxiety and Anger #atozchallenge - Care for the carers.

Two days after her 73rd birthday my Mum took her final breath. She had Alzheimers and Motor Neurone Disease. For three months I was her main carer, an honour I will be grateful for and cherish forever. This years #atozchallenge theme will focus on some of the stories and emotions that presented themselves during this time. 


Remember to care for the carers.  


Anger and Anxiety





Take a big deep breath in... 2 3 and 4.  

Hold it  2 3 4 5.  


Release 2 3 4 5 6 7. (Repeat.)


From the moment I learned that Mum had less than 6 months to live, I felt anxiety and anger stirring.